Monday, February 16, 2009


Yes CTV finally got themselves organized enough to confirm a date for the W-FIVE documentary, it will air Saturday February 21st at 7:00 pm. I’m not too sure what to expect since I learned the fundamental lesson to not trust the media. I do however feel much more comfortable with the CTV production and can’t foresee any hidden agenda behind the story. The producer Brett Mitchell was great to work with as were all the crew members including the camera man in China. I’m sure it will turn out good but I still don’t like promoting something that I haven’t seen. For anyone who is not able to catch the episode on TV it will also be available for viewing on, click on W-FIVE and you can download the show but it can take a couple of weeks before it’s available.
As for my health update, I don’t really have any great news to report. After a reprieve for a few weeks, the sharp pains in my chest have returned but they have changed. The pain can show up anytime and is no longer triggered by specific movements. It lasts much longer but feels less intense and will spontaneously reoccur throughout the entire day. The instant sting does not produce a painful grimace anymore but perhaps I’m just getting used to it and able to ignore it somewhat. My eyes have bothered me ever since I lost the vision in my left eye in 2007 from an MS attack. My eyesight eventually recovered but has never been the same. My eyes tend to get very sore and the vision in my left becomes blurry particularly when I’m tired or fatigued. Yesterday was a different story, my eyes began to get very sore while I was in church and the discomfort continued into the afternoon with both eyes becoming blurred. I was cruising around Costco on my scooter and of course it was very busy being a Sunday afternoon. Things were definitely not normal and I was actually surprised that I didn’t run into anyone or knock over any displays because my vision had become extremely blurry (good thing I’m an expert driver on my scooter)! I don’t recall my eyes ever being this bad other than when I first lost my sight and again there didn’t seem to be a reason for this. The situation did cause some concern but fortunately everything seems to be back to normal this morning.
I suppose it’s good that I have my blog to express some of the concerns and problems that I go through because I don’t normally complain about anything so this is sort of an outlet for me. It’s typical for me to just deal with my issues internally which was probably one of the main causes of the communication problem that developed in my marriage. Anyway I just don’t like to complain, it doesn’t make me feel any better and I’m not looking for sympathy. I recall going to my doctor one day when the woman at the reception commented on how happy I always seem to be. She said that I always have a smile on my face and she has never heard me complain about anything. She found it very uplifting that I was always positive where as if anyone had something to whine about it was me yet all day long people file in and out of that office complaining about nothing really. I’m very thankful that I don’t live this way!
The cold that I thought I had beaten showed up again on Friday so I wasn’t feeling very well up until Sunday. Perhaps this had something to do with my eye problems but again I feel okay today. I took it pretty easy Friday and Saturday so I guess it’s good that I didn’t have anyone to disappoint for Valentine’s Day. It’s actually been kind of lonely since I didn’t have my children and I ended up having the whole house to myself. Well I’ve been dog sitting so I guess I haven’t been completely alone and the weekend has turned out to be quite productive. I found myself in an excellent writing groove and made a lot of progress on my book and cooked up a large batch of spaghetti sauce that I’ll freeze and get three meals out of. Family day has turned into a week off of school so I’ll get to spend the entire week with my kids, looking forward to that! Saturday is not far off so I’ll be looking forward to watching W-FIVE as well. We’ll see how the show turns out but good or bad I’ll write about it in my next blog. It will also be interesting to see if anything will happen with the number of hits my website and blog receive after the show has aired.
Stay tuned,


Joe said...

Just watched the W Five show. My name is Joe and I live in Toronto, Ontario. I was diagnosed with MS 1 1/2 years ago. I'm now 36 and will be following your progress. I find what you did very courageous and I hope that this works for you. I have a question for you but don't feel obligated to answer. Do you take any other medications? I am on Copaxone and have found that I have had less attacks.

slc said...

HI my name is Shannon. I live in Lethbridge Alberta. I have a condition similar to ms but I have to say it is some what different. You were very courageous by going to China. I hope all works out for you. Would love to hear how you are doing.

Leah said...

Hi Lee. I watched your story on W-5 tonight and wanted to contact you to let you know how your story touched me and to thank you for your courage.

My name is Leah. I live in Victoria but grew up in Regina. I am 36 and was diagnosed with MS when I was 29, shortly after having my daughter. I am one of the lucky few MS patients, still in the RR stage, and still doing relatively well. I've had only one very bad attack and a few 'reminder symptoms' in the last 8 years. I do, however share your fear that this disease will one day take me away from my daughter through inability to participate in her daily life the way that other Moms do. In this, I am probably one of the few people who can truly understand you.

I am again doing the MS Walk this year, 'cause darn it, as long as I can walk, I will. I am captain of a team called 'We Got Nerve' (kinda like you). I have forwarded your story to my team members to give them a perfect example of EXACTLY WHY we are walking.

Thank you again.

Christina said...

I saw you on TV. Have you heard of StemTech? The head researcher is from Montreal. He has discovered a way for your bone marrow to release 30% more adult stem cells on a daily bases. If you want more info give me a shout.
Christina Limmer